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RESEARCH, TEACHING, or OTHER INTERESTS
Health (social science), Gender Studies, Anthropology
7
Scopus Publications
Scopus Publications
- "I found out about Zika virus after she was born." Women's experiences of risk communication during the Zika virus epidemic in Brazil, Colombia, and Puerto Rico
María Consuelo Miranda Montoya, Claudia Hormiga Sánchez, Ester Paiva Souto, Edna Acosta Pérez, Gustavo Corrêa Matta, Marcela Daza, Gabriela Lopes Gama, Camila Pimentel, Marcela Mercado, Angélica María Amado Niño, Luz Marina Leegstra, Elena Marbán Castro, Olivia C. Manders, Lauren Maxwell
Plos Global Public Health, 2024
Providing accurate, evidence-based information to women with Zika infection during pregnancy was problematic because of the high degree of uncertainty in the diagnosis of the infection and the associated risk. The 2015–17 Zika virus epidemic overwhelmingly affected women in countries with limited access to safe abortion. Understanding women’s perspectives on risk communication during pregnancy in the context of an emerging pathogen can help inform risk communication in response to future outbreaks that affect fetal or child development. We conducted a cross-sectional qualitative interview study with 73 women from 7 locations in Brazil, Colombia, and Puerto Rico to understand women’s experiences of Zika virus (ZIKV) test and outcome-related communication during the ZIKV pandemic. We used thematic analysis to analyze the in-depth interviews. Participants in Brazil and Colombia reported that the healthcare system’s lack of preparation and organization in communicating ZIKV test results and associated adverse outcomes led to their feeling abandoned and alone in confronting the challenges of a ZIKV-affected pregnancy. In contrast, participants in Puerto Rico reported that the regular testing schedules and clear, well-planned communication between the care team and between providers and pregnant women helped them to feel they could prepare for a ZIKV-affected pregnancy. Communication of the risk associated with an emerging pathogen suspected to affect pregnancy and developmental outcomes is a fraught issue. Public health authorities and healthcare providers should work together in the interpandemic period to understand families’ preferences for risk communication during pregnancy in the presence of uncertainty and develop a community-informed plan for risk communication. - Pregnant women’s perceptions on information sources on Zika virus: a qualitative study
Priscila Cardia Petra, Elena Marbán-Castro, Gustavo Corrêa Matta, Claudia M Hormiga, Camila Pimentel, et al.
Physis, 2024
The Zika virus (ZIKV) epidemic had a sanitary, psychosocial, and economic impact on individuals of reproductive age. The primary concern revolved around infection during pregnancy due to possible vertical transmission and its association with adverse fetal and infant outcomes, known as Congenital Zika Syndrome (CZS). This qualitative study employs phenomenology and grounded theory. This study includes interviews with 98 women, some pregnant during the ZIKV epidemic in Brazil, Colombia, and Puerto Rico, who had children with CZS or without diagnosed neurological impairment. Additionally, the study included a group of women who were pregnant during the COVID-19 pandemic in these same countries. In both groups, interviewees had varying levels of knowledge about ZIKV. The study found that messages conveyed through the media tended to be alarmist, in contrast to the information provided by healthcare professionals, which was considered more trustworthy. Pregnant women during the ZIKV epidemic reported receiving their ZIKV and CSZ infection diagnoses late, either during or after childbirth. The study underscores the needs of pregnant women in high-risk scenarios, the importance of health education processes, and the necessity to reinforce communication and continuing education. - Profile of traditional midwives in the Amazon: partnership relations between health services and political participation
Gabriela Duan Farias Costa, Camila Pimentel, Júlio Cesar Schweickardt
Physis, 2023
Resumo Este artigo analisa o perfil das parteiras tradicionais no estado do Amazonas, Brasil, destacando a identificação das características socioeconômicas, seus locais de atuação e a análise da relação entre o trabalho das parteiras e os serviços de saúde. Trata-se de um estudo descritivo e analítico. As informações coletadas são oriundas de um instrumento aplicado às parteiras nos municípios do estado do Amazonas que compõe a base de dados. Constatou-se que a maioria das parteiras entrevistadas possuem ensino fundamental incompleto; residem em área rural ou ribeirinha; iniciaram a atividade de partejar na adolescência, sobretudo por meio da transmissão de saberes no contexto familiar ou comunitário e pela ausência ou indisponibilidade dos serviços de saúde. Verificou-se que a maioria das entrevistadas relataram não realizar seu trabalho de assistência às gestantes por ocasião dos partos nos estabelecimentos de saúde e não recebem ajuda financeira ou material das secretarias de Saúde para assistir às parturientes. Os resultados mostram a importância da presença e do apoio das parteiras tradicionais nos territórios amazônicos. É necessário fortalecer suas práticas, envolvendo o diálogo entre os diversos saberes existentes na produção do cuidado. - Racial disparities: An analysis of obstetrical violence among afro-brazilian women
Kelly Diogo de Lima, Camila Pimentel, Tereza Maciel Lyra
Ciencia E Saude Coletiva, 2021
Resumo Objetivou-se compreender e analisar as vivências de mulheres negras acerca dos cuidados na gestação, no parto e no pós-parto. Trata-se de uma pesquisa empírica, de abordagem qualitativa. Foram entrevistadas mulheres que se autodeclaram negras ou pretas e que passaram pelos serviços públicos de saúde nos municípios de Pernambuco. As narrativas foram coletadas por meio de entrevista semiestruturada. Foi utilizada a técnica de análise de conteúdo. As narrativas discorrem sobre os temas da violência obstétrica e do racismo institucional. A interseção de eixos de opressão, como raça, classe e gênero, são determinantes nas intervenções e práticas abusivas na atenção que envolve o parto. Conclui-se que o racismo estrutural dificulta e nega o acesso das mulheres negras aos seus direitos reprodutivos. - Hope and trust in times of Zika: The views of caregivers and healthcare workers at the forefront of the epidemic in Brazil
Clarissa Simas, Loveday Penn-Kekana, Hannah Kuper, Tereza Maciel Lyra, Maria Elisabeth Lopes Moreira, Maria do Socorro Veloso de Albuquerque, Thália Velho Barreto de Araújo, Ana Paula Lopes de Melo, Corina Helena Figueira Mendes, Martha Cristina Nunes Moreira, Marcos Antonio Ferreira do Nascimento, Camila Pimentel, Marcia Pinto, Sandra Valongueiro, Heidi Larson
Health Policy and Planning, 2020
This article investigates how hope and trust played out for two groups at the forefront of the Zika epidemic: caregivers of children with congenital Zika syndrome and healthcare workers. We conducted 76 in-depth interviews with members of both groups to examine hope and trust in clinical settings, as well as trust in public institutions, in the health system and in the government of Brazil. During and after the Zika epidemic, hope and trust were important to manage uncertainty and risk, given the lack of scientific evidence about the neurological consequences of Zika virus infection. The capacity of healthcare workers and caregivers to trust and to co-create hope seems to have allowed relationships to develop that cushioned social impacts, reinforced adherence to therapeutics and enabled information flow. Hope facilitated parents to trust healthcare workers and interventions. Hope and trust appeared to be central in the establishment of support networks for caregivers. At the same time, mistrust in the government and state institutions may have allowed rumours and alternative explanations about Zika to spread. It may also have strengthened activism in mother’s associations, which seemed to have both positive and negative implications for healthcare service delivery. The findings also point to distrust in international health actors and global health agenda, which can impact community engagement in future outbreak responses in Brazil and other countries in Latin America. - Access to healthcare for children with Congenital Zika Syndrome in Brazil: Perspectives of mothers and health professionals
Maria S V Albuquerque, Tereza M Lyra, Ana P L Melo, Sandra A Valongueiro, Thalia V B Araújo, Camila Pimentel, Martha C N Moreira, Corina H F Mendes, Marcos Nascimento, Hannah Kuper, Loveday Penn-Kekana
Health Policy and Planning, 2019
The Congenital Zika Syndrome (CZS) epidemic took place in Brazil between 2015 and 2017 and led to the emergence of at least 3194 children born with CZS. We explored access to healthcare services and activities in the Unified Health Service (Sistema Único de Saúde: SUS) from the perspective of mothers of children with CZS and professionals in the Public Healthcare Network. We carried out a qualitative, exploratory study, using semi-structured interviews, in two Brazilian states—Pernambuco, which was the epicentre of the epidemic in Brazil, and Rio de Janeiro, where the epidemic was less intense. The mothers and health professionals reported that healthcare provision was insufficient and fragmented and there were problems with follow-up care. There was a lack of co-ordination and an absence of communication between the various specialized services and between different levels of the health system. We also noted a public–private mixture in access to healthcare services, resulting from a segmented system and related to inequality of access. High reported household expenditure is an expression of the phenomenon of underfunding of the public system. The challenges that mothers and health professionals reported exposes contradictions in the health system which, although universal, does not guarantee equitable and comprehensive care. Other gaps were revealed through the outbreak. The epidemic provided visibility regarding difficulties of access for other children with disabilities determined by other causes. It also made explicit the gender inequalities that had an impact on the lives of mothers and other female caregivers, as well as an absence of the provision of care for these groups. In the face of an epidemic, the Brazilian State reproduced old fashioned forms of action—activities related to the transmitting mosquito and to prevention with an emphasis on the individual and no action related to social determinants. - Social and economic impacts of congenital ZIKA syndrome in Brazil: Study protocol and rationale for a mixed-methods study [version 2; peer review: 2 approved]
Hannah Kuper, Tereza Maciel Lyra, Maria Elisabeth Lopes Moreira, Maria do Socorro Veloso de Albuquerque, Thália Velho Barreto de Araújo, Silke Fernandes, Mireia Jofre-Bonet, Heidi Larson, Ana Paula Lopes de Melo, Corina Helena Figueira Mendes, Martha Cristina Nunes Moreira, Marcos Antonio Ferreira do Nascimento, Loveday Penn-Kekana, Camila Pimentel, Marcia Pinto, Clarissa Simas, Sandra Valongueiro
Wellcome Open Research, 2019
Global concern broke out in late 2015 as thousands of children in Brazil were born with microcephaly, which was quickly linked to congenital infection with Zika virus (ZIKV). ZIKV is now known to cause a wider spectrum of severe adverse outcomes—congenital Zika syndrome (CZS)—and also milder impairments. This study aimed to explore the social and economic impacts of CZS in Brazil. Data was collected through mixed methods across two settings: Recife City and Jaboatão dos Guararapes in Pernambuco State (the epicentre of the epidemic), and the city of Rio de Janeiro (where reports of ZIKV infection and CZS were less frequent). Data was collected May 2017-January 2018. Ethical standards were adhered to throughout the research. In-depth qualitative interviews were conducted with: mothers and other carers of children with CZS (approximately 30 per setting), pregnant women (10-12 per setting), men and women of child-bearing age (16-20 per setting), and health professionals (10-12 per setting). Thematic analysis was undertaken independently by researchers from at least two research settings, and these were shared for feedback. A case-control study was undertaken to quantitatively explore social and economic differences between caregivers of a child with CZS (cases) and caregivers with an unaffected child (controls). We aimed to recruit 100 cases and 100 controls per setting, from existing studies. The primary caregiver, usually the mother, was interviewed using a structured questionnaire to collect information on: depression, anxiety, stress, social support, family quality of life, health care and social service use, and costs incurred by families. Multivariable logistic regression analyses were used to compare outcomes for cases and controls. Costs incurred as a result of CZS were estimated from the perspective of the health system, families and society. Modelling was undertaken to estimate the total economic burden of CZS from those three perspectives.